Becoming my own advocate

I haven’t written in this blog for almost three years, I know. Well, a lot has happened in that time! But I’ll spare you the details.

In these past few years I have learned a lot about myself and how my mind works. I have learned that I’m neurodivergent, that is, that my brain is wired a bit differently from the brains of people who are neurotypical. And part of my neurodivergence includes challenges with communication. It takes me longer than neurotypical people to process verbal information. It takes me longer to find my words and articulate what I want to say verbally. As a child, I was also extremely shy and had some social and sensory challenges. And those challenges have continued, to some degree, into my adulthood.

I remember the days in which I was nervous about questioning my doctors’ decisions. I went along with almost all of their decisions. I felt anxious about confronting them about decisions I was uneasy with. And I even put off calling them when I was experiencing a Crohn’s flare. It was extremely difficult for me to find my voice, and advocate for myself.

There were a few turning points in which I realized I had to find a way to befriend my anxiety and tell the doctors what was on my mind.

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