Toni Bernhard on “how to be sick”

The NPR recently featured an article by Toni Bernhard about her book: “How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers.” I have not read the whole book, but it sounds wonderful! Some of my friends with chronic illness have read it and recommended it. You can read an excerpt from her book that is just below the NPR article. Click here: Learning to Life a Full Life with Chronic Illness.

Every moment is so precious

A few weeks ago, Sally Massagee told CNN’s Anderson Cooper about how it was for her during the time in which she was had a mysterious disease. For four years, she did not know what was wrong with her body or if she would ever recover from the disease. Sally sought treatment from many doctors at Duke University Medical Center before she was accepted at the National Institutes of Health Unexplained Disease Program. She went through yet another week of testing, but this time it was not in vain. The doctors found that there were abnormal proteins in her body that were triggering her muscles grow uncontrollably. Sally’s tremendous overgrowth of muscle made it extremely difficult for her to even move her arms. Dr. Sanjay Gupta added that the muscle overgrowth could have eventually crushed her ribcage and organs. More

The healing power of being together

We are all isolated at times, especially when it is hard to talk about our inner worlds. Sometimes we may feel like no one understands and no one experiences the same thing. It can feel like the chronic condition creates an enormous social barrier. But actually, there are a lot of us out there, dealing with the same kinds of difficulties related to trying to function “normally” in a society that often stigmatizes people like us. When we are together, we share a great power in taking back the power to define our experiences and define what is “normal.” There is a great power in being together. More

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