Today is Blog Action Day and the theme is inequality.
I have devoted a good chunk of my professional life to advocacy for disabled people. I’ve submitted recommendations for revisions of the IDEA (Individuals with Disabilities in Education Act) in the US, served as co-chair of the Consortium for People with Disabilities Prevention Task Force, co-lead a coalition to save a $2.5 million program for children with disabilities, and spoken publicly at San Francisco City Hall about the need for better services for people with disabilities and aging adults.
My heart was fully engaged in all of those professional activities. I know firsthand what it is like to be a person with a disability. I’ve lived months of my life as a person with severe inflammatory bowel disease, and some of those months were on disability. They were some of the hardest months of my life.
I am dismayed by the lack of progress on disability issues in the last decade. And it is not just in the US, my home country, that has failed in bringing about meaningful progress for people with disabilities overall.